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') you are using an outdated browser. please upgrade your browser or activate google chrome frame to improve your experience. the greater manchester academic nephrology network about research salford royal nhs foundation trust royal manchester children's hospital manchester royal infirmary people all our people choose from one of our institutions university of manchester salford royal nhs foundation trust royal manchester children's hospital manchester royal infirmary clinical trials salford royal nhs foundation trust royal manchester children's hospital manchester royal infirmary news and events links for investigators patients & family uk calciphylaxis study information trial documents registration publications research team faqs resources patient consent document research register form baseline data collection form follow up form contact us useful links more trials information trial documents registration publications reseach team faqs patient consent document research register form baseline data collection form follow up data collection form contact us useful links more trials information for patients & family calcific uraemic arteriolopathy or calciphylaxis it is frequently called is a syndrome of calcification of the walls of small blood vessels which supply the skin and/or muscle. this leads to lack of blood flow causing rashes, ulcers and pain in the affected tissues. it commonly affects the legs and arms but can affect the torso, back or breasts also. it occurs almost exclusively in patients with chronic kidney disease but remains very rare with for example approximately 1 case per year for every 600 dialysis patients in the uk. the trigger for the disease is not known but may include local injury. there is no specific treatment as yet that has been shown to work in many or most cases. doctors often concentrate on getting the balance of minerals in the body right ie calcium and phosphate control. this may require changing dialysis regimes, changing medications, or considering surgery for overactive parathyroid glands which release a hormone (pth) which causes mineral to leech out of the bones. in addition, health-care teams focus on pain control, good nutrition and excellent ulcer care if the skin has broken down. this collaborative research project with the uk & germany has been set up to try and collect information on the patients who get the disease – to ask if there is anything in their treatment or previous blood tests etc, to help us identify who may be at risk of calciphylaxis. in addition, we are collecting blood samples and samples of tissue eg from skin biopsy to diagnose the condition. we will perform thorough tests on these to help increase understanding of what the disease process is, so that we can improve our treatments in the future. © 2018 the greater manchester academic nephrology network ( gmann ). home about us research people clinical trials news links contact

URL analysis for calciphylaxis.org.uk

https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/research.cfm?ref=3#tab3
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/trials/iccn/home.cfm?ref=patients
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/contact-us.cfm
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/trials/iccn/useful-links.cfm
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/research.cfm
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/trials/iccn/research-team.cfm
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/clinical-trials.cfm?ref=1#tab1
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/trials/iccn/docs/generic_uk_calciphylaxis_consent_form_v2.0_august_2011.doc
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/research.cfm?ref=2#tab2
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/news-and-events.cfm
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/clinical-trials.cfm?ref=3#tab3
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/research.cfm?ref=1#tab1
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/trials/iccn/home.cfm?ref=professionals
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/trials/iccn/reports/forms/researchregform.cfm
https://www.gmann.co.uk/website/trials/iccn/home.cfm/website/about-us.cfm
manchester.ac.uk
cmft.nhs.uk
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Whois Information

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Domain name:
calciphylaxis.org.uk

Registrant:
Hope Hospital

Registrant type:
UK Individual

Registrant's address:
Adrian House
32 Jupp Road
2
London
Greater London
E15 1LF
United Kingdom

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 26-Sep-2014

Registrar:
123-Reg Limited t/a 123-reg [Tag = 123-REG]
URL: http://www.123-reg.co.uk

Relevant dates:
Registered on: 30-Apr-2006
Expiry date: 30-Apr-2019
Last updated: 09-Feb-2017

Registration status:
Registered until expiry date.

Name servers:
ns-1533.awsdns-63.org
ns-1958.awsdns-52.co.uk 205.251.199.166
ns-379.awsdns-47.com
ns-631.awsdns-14.net

WHOIS lookup made at 12:43:24 23-Sep-2017

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS calciphylaxis.org.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Hope Hospital

TYPE
UK Individual

ADDRESS
Adrian House
32 Jupp Road
London
Greater London
E15 1LF
United Kingdom
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 26-Sep-2014

DOMAIN

  SPONSOR 123-Reg Limited t/a 123-reg [Tag = 123-REG]

  CREATED 2006-04-30

  CHANGED 2017-02-09

STATUS
Registered until expiry date.

NSERVER

  NS-1533.AWSDNS-63.ORG 205.251.197.253

  NS-1958.AWSDNS-52.CO.UK 205.251.199.166

  NS-379.AWSDNS-47.COM 205.251.193.123

  NS-631.AWSDNS-14.NET 205.251.194.119

  NAME calciphylaxis.org.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED yes

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