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home about avn living with avn get involved about us contact us glossary links join our community registration community sign in username password remember me forgot your password? forgot your username? members' feedback "i'm finding it shocking and surprising the number of new people joining the community. let me explain. i was diagnosed with avn first in both knees back in 2005, over the next few years it was found in both hips and shoulders. i had never come across avn before and felt like i was the only person with it, i was always having to explain to people what it was." "thankfully i found this website and community over a year ago and realised i was not the only one suffering with avn, it has been such a help talking to fellow sufferers who understand what i am going through." text taken from a recent post in our community forum. join us if you are suffering from avascular necrosis avn osteonecrosis on, or are close to someone that is, please consider joining our avn charity uk community. you will find many shared experiences about avn and how it affects each of us differently, importantly there are also excellent success stories about the road to "pain free". we also welcome any health professionals who are involved in any way with avascular necrosis avn, p lease let us know how you think you can help. welcome to healthy bones charitable trust dedicated to spreading the awareness, understanding, support and needed research into the rare bone condition of avascular necrosis (avn). the disease is also known as osteonecrosis (on), ischemic bone necrosis, bone infarct and aseptic necrosis . in children it is known as perthes disease . when triggered by radiotherapy it can be known as osteoradionecrosis orn . we generally refer to it as avn. when occurring in the knee, it may be known as sponk and when in the jaw it may be known as bronj . there are no statistics available but we believe there are between 750 and 2,000 new cases of avn diagnosed each year in the british isles. we are the only uk and ireland organisation dedicated to avn. we are very new - created by a couple of fellow sufferers, with the objective of offering information and support in different ways to anyone in the british isles who has, or is in any way affected by this condition. also to promote the much-needed research into avascular necrosis avn. definition of avascular necrosis avn avascular - having few or no blood vessels* necrosis - death of living tissue* * from encyclopaedia britannica the bones in the joint having been deprived of a good blood supply, result in the death of the bone. in time this concludes with partial or complete collapse of the affected joint. it is a disabling condition affecting any joint in the body with no known cure. it can affect a single joint, many different joints ( multi focal ), or both left and right of the same joint ( bilateral ). the disease affects young and old alike with resulting continuous chronic pain that some say is comparable with bone cancer. avascular necrosis avn is not classed as hereditary, but some of the causes may be. while disabling, thankfully avn is not life threatening. unfortunately it is often progressive, meaning it worsens with time, so managing avn can be a lifelong process. understanding the pain from avn mri scan clearly displaying an unusual case of avascular necrosis avn in the long bones. click image for more info. feedback from almost all avn sufferers in our community has revealed that our health service specialists have little or no understanding of the horrific pain that accompanies avn. the x-rays and mri scans do help the specialist understand what has happened within the affected joint / bone, but these images do not convey the chronic pain and devastating effect this has on the quality of life. this is one of the biggest frustrations for all avn sufferers. awareness of avn in the british isles very few people have heard of avascular necrosis avn osteonecrosis . except for the medical profession, it is probable that only sufferers and those close to them have any awareness of the disease. sadly when first getting diagnosed it can be a very lonely place, full of frustration, despair and complete loss of hope. our charitable trust addresses these frustrations by opening doors of knowledge and shared experiences to sufferers and those around them. by definition, sharing is helping. we are helping charitable trust dedicated to spreading the awareness, understanding, support and research into the rare bone condition of avascular necrosis avn or osteonecrosis on in the uk. first of all we created this informative website, the content provided is for information purposes only and is not in any way intended to be a substitute for medical consultation with a qualified professional ( see disclaimer ). this website is designed to be uncomplicated and easy to follow, for you to benefit without getting lost. it is split into different sections, explaining avn osteonecrosis and how it can affect different joints in our bodies, how to live with it day-by-day and to give our charity news. please take some time a look around, if you like what you see please consider joining our community, there are no costs or fees. we have recently created our facebook and twitter social media pages, please take a look and "follow" or "like". last updated on thursday, 15 october 2015 10:47 copyright 2018 avn charity uk - uk and eu cookie compliant disclaimer, cookie and privacy policy . - website kindly hosted by anlx.net .

URL analysis for avncharity.org.uk

http://www.avncharity.org.uk/component/user/reset
http://www.avncharity.org.uk/glossary#multifocal
http://www.avncharity.org.uk/glossary#osteonecrosis
http://www.avncharity.org.uk/glossary#bronj
http://www.avncharity.org.uk/home
http://www.avncharity.org.uk/glossary
http://www.avncharity.org.uk/glossary#chronic
http://www.avncharity.org.uk/about-avn-intro
http://www.avncharity.org.uk/get-involved
http://www.avncharity.org.uk/join-our-community
http://www.avncharity.org.uk/glossary#necrosis
http://www.avncharity.org.uk/glossary#perthes
http://www.avncharity.org.uk/glossary#bone_infarct
http://www.avncharity.org.uk/component/user/remind
http://www.avncharity.org.uk/cookie-law
easyfundraising.org.uk
avncharity.easysearch.org.uk
avncharity.org.uk

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Error for "avncharity.org.uk".

the WHOIS query quota for 2600:3c03:0000:0000:f03c:91ff:feae:779d has been exceeded
and will be replenished in 86 seconds

WHOIS lookup made at 22:56:01 13-Sep-2017

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2017.

You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS avncharity.org.uk

  PORT 43

  TYPE domain

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

DOMAIN

  NAME avncharity.org.uk

NSERVER

  NS1.ANLX.NET 81.91.102.38

  NS2.ANLX.NET 81.91.102.39

  NS3.ANLX.NET 217.146.97.65

  NS4.ANLX.NET 81.91.100.15

  NS5.ANLX.NET 81.91.109.25

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